Our son Gustin will be 18 years old on Friday, Jan.15. Thirteen years ago, 7 months after his 5th birthday we learned that he had Duchenne Muscular Dystrophy. We had no idea what the doctor was talking about when he told us he had it and what it was. It was the most devastating news! We went home and couldn't stop crying. Feeling the need to learn more we turned to our 1970 Encyclopedia and it told us most boys don't live beyond 18 yrs old. It hurt more than imagineable! As we looked at our… Continue