Rita Felling's Blog – January 2010 Archive (9)

a simple walk

WALK A SIMPLE



I took a walk with Jesus, yesterday. The thin layer of melting white snow crunched under our feet. I shivered from the January north wind and pulled my collar tighter around my neck. Feeling happy, I had chosen boots to wear for our walk. Jesus walked only in sandals and a white flowing robe of cotton. We walked in silence for some time listening to the sounds around us. From the trees above our heads birds could be heard chirping and some children’s laughter echoed… Continue

Added by Rita Felling on January 29, 2010 at 5:55pm — 2 Comments

Sunday, October 4, 2009 If you dare come have a closer look, I smile because; Cody stood for me today again. I pulled him to a standing position from his wheelchair, wrapping my arms around him, to …

Sunday, October 4, 2009

If you dare come have a closer look, I smile because;



Cody stood for me today again. I pulled him to a standing position from his wheelchair, wrapping my arms around him, to help support his balance. While it was brief, a mere 10 seconds, I embraced the strength he found in his failing body. He beamed. His beautiful smile touched me so deeply.



As I sat him down again he excitedly said "see mom, I can stand for you". Yes he did. That was all I… Continue

Added by Rita Felling on January 18, 2010 at 11:37pm — No Comments

Watched the boys swim today. If only we were fish, or a species of man that lived in water. Cody would be walking. I love his independence and confidence in the water. I see so much of him come alive…

Watched the boys swim today. If only we were fish, or a species of man that lived in water. Cody would be walking. I love his independence and confidence in the water. I see so much of him come alive as he becomes weightless. I see him use muscle that otherwise seem to be of no use. Swimming is truly a benefit to his well being.



Josiah has came such a long way from when he first began to go under water. The fear in his eyes has totally vanished, replaced by a confident smile as he… Continue

Added by Rita Felling on January 18, 2010 at 11:34pm — No Comments

Snow was on the ground when we awoke this morning. A lite dusting had appeared in the night. As I opened my door to let out the dog a sharp sting could be felt from the wind. It Seemed our seasons ha…

Snow was on the ground when we awoke this morning. A lite dusting had appeared in the night. As I opened my door to let out the dog a sharp sting could be felt from the wind. It Seemed our seasons had truly changed. The trees were much bearer. On the ground laid massive piles of leaves that occasionally were whirled around by the cool autumn wind. Outside indeed was different.



With this new season I wondered would it bring along change for us. Change that we would embrace. Change… Continue

Added by Rita Felling on January 18, 2010 at 11:34pm — No Comments

Sunday, October 11, 2009 Josiah my youngest became ill this evening. Seems a strain of a virus has interupted our lives. While I held Josiah in my arms this evening he fell a sleep. At last a moment …

Sunday, October 11, 2009

Josiah my youngest became ill this evening. Seems a strain of a virus has interupted our lives. While I held Josiah in my arms this evening he fell a sleep. At last a moment of rest for his fatigued little body. He breathed deep with a kind of half snore and was beginning to feel warm to the touch. Rest was good and needed.



Tenderly I ran my fingers through his hair gently stroking his forehead every so often. My thoughts drifted away from the movie I… Continue

Added by Rita Felling on January 18, 2010 at 11:33pm — No Comments

Wednesday, November 18, 2009 Waiting can be so difficult. It seems as though I have spent much of my life consumed with waiting. While my life will still be filled with periods of waiting, none will …

Wednesday, November 18, 2009

Waiting can be so difficult. It seems as though I have spent much of my life consumed with waiting. While my life will still be filled with periods of waiting, none will be has difficult as the past 15 years.



Today Wednesday November 18 my middle son Cody has begun the first stages of participating in a study for treatment of nonambulatory DMD patients with ataluren Cody is the first child to take part in this phase of the study in the world. The… Continue

Added by Rita Felling on January 18, 2010 at 11:31pm — No Comments

My oldest son Zach told me about a story of Internet bullying this evening. It was a story of a young man in high school that had been a victim of Internet bullying, tragically it lead to his suicide…

My oldest son Zach told me about a story of Internet bullying this evening. It was a story of a young man in high school that had been a victim of Internet bullying, tragically it lead to his suicide. He had kept this abuse hidden from his family and apparently his friends. For they too were not aware that it was troubling him so deeply. One evening his parents found him hung in his room. His tragic story now a topic of discussion on line. My heart ached at the thought of someone feeling so… Continue

Added by Rita Felling on January 18, 2010 at 11:29pm — No Comments

t was a delight to spend a warm hour watching my boys swim today. Outside the frigid artic air brought the temperature to zero for a high. Enclosed in this glass room we could see snow all around us …

t was a delight to spend a warm hour watching my boys swim today. Outside the frigid artic air brought the temperature to zero for a high. Enclosed in this glass room we could see snow all around us but the air felt almost tropical. Cody and Josiah with their newly appointed grandma/friend and swim assistant Janice laughed and splashed while stretching their limbs. I have spent a good part of my life trying to bring special people into my sons lives. When physically challenged, playmates are… Continue

Added by Rita Felling on January 18, 2010 at 11:28pm — No Comments

Cody told me today" not being able to walk sucks". I saw some new anger in him I had not really noticed before. He wanted new batteries for his WII remote control, which just happened to be upstairs …

Cody told me today" not being able to walk sucks".

I saw some new anger in him I had not really noticed before. He wanted new batteries for his WII remote control, which just happened to be upstairs in the kitchen. I asked him to wait while I finished assisting his brother. Josiah had been building with Lego's and was feeling his own sense of dependency from Duchenne. He had been struggling to open some new packages of blocks. Lacking the strength to pull open the plastic sealed bags by… Continue

Added by Rita Felling on January 18, 2010 at 11:25pm — No Comments

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