Suzanne Gaglianone's Blog (1)

Advocacy Project

The very first thing our family did with PPMD was go to Washington DC in February 2001. It was 4 months after Michael was diagnosed with DMD. We were still in somewhat of a shocked phase not knowing what to do or where to turn. Wow, what a trip! There was virtually no federal funding for DMD research but the MD Care Act was just introduced and we were there with about 75 others to make our case. It was such an empowering feeling to be able to do SOMETHING. It filled us with hope. There are… Continue

Added by Suzanne Gaglianone on December 17, 2008 at 11:00pm — 2 Comments

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