Brian Denger's Blog – October 2012 Archive (2)

Facing reality

1997 may not seem so long ago, but at times it feels like half a lifetime to me. That was the year my family learned Matthew’s motor difficulties were something physical therapy could not correct and the first time we heard the word Duchenne. Everyone’s world changes after diagnosis of a devastating chronic illness and over the years my family and I experienced many…

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Added by Brian Denger on October 22, 2012 at 8:00am — 3 Comments

Protecting family caregivers from employment discrimination

When I was young, I remember my parents saying that “ignorance is bliss”. I never liked that expression and it has become more relevant for me when I speak with parents who have children affected by Duchenne muscular dystrophy who are trying to navigate educational or health care systems. Parents are often overwhelmed by the complexity of these programs and their…

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Added by Brian Denger on October 4, 2012 at 11:00am — No Comments

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