Brian Denger's Blog – July 2008 Archive (2)

Managing "us"

O.K., so having our child diagnosed with Duchenne was not by choice, let alone having both sons affected. My wife, Alice, and I didn't ask to spend countless hours in waiting rooms, speaking to doctors (Some good, some...well..you know...), deciding what wheelchair is best and wondering whether insurance will cover it or taking a large chunk of savings and weekly salary to buy a gas guzzling accessible van. I'd rather not have to put up with people who stare at my sons, explain to family why we… Continue

Added by Brian Denger on July 25, 2008 at 7:54pm — 1 Comment

Heeding the beat of a different drummer.

When I think of families caring for a child with a chronic condition I sometimes think of nineteenth century American writer and poet Henry David Thoreau. He wrote "The mass of men lead lives of quiet desperation." I don't entirely agree with Thoreau, yet realize there are moments in our lives where we struggle for control and insight.



It is a daunting task to live and breathe Duchenne each and every day and those of us connected to this disorder cannot escape it's grasp. Unlike… Continue

Added by Brian Denger on July 6, 2008 at 7:45pm — 3 Comments

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