Brian Denger's Blog – June 2008 Archive (3)

Accessibility and foresight

I recently won a pair of tickets to a Red Sox game at a race and forgive me as I didn't know who they were playing until the night of the game. If it isn't running I'm afraid I am really not interested, but don't hold it against me! Still, I live in New England and have taken my daughter Rachel and older son Matthew to a game in the past, so this was a perfect opportunity to take my younger son Patrick. The plan was to drive to the northernmost "T" Station (Boston's subway) avoiding Boston's… Continue

Added by Brian Denger on June 27, 2008 at 10:15pm — 2 Comments

2:00 AM

Matthew was diagnosed ten years ago with Duchenne and Patrick about another eighteen months later. Today it is like looking back into a 1950's TV show for my family and me. My wife and I sometimes speak about how much simpler things were "back then". In some ways there is truth to the saying that ignorance is bliss. Sure, Matthew had "refused" to climb stairs alternating feet and wouldn't pedal a tricycle, but he was also content to play standing in front of the couch with his toys on the… Continue

Added by Brian Denger on June 20, 2008 at 6:18pm — 6 Comments

IEPs and other things we learn.

Matthew is finishing his freshman year and he, Alice and I recently attended his annual IEP meeting. These meetings often lead to concerns about high blood pressure and lost sleep for parents. Working with educators and professionals in their domain and attempting to speak in their language is challenging. Fortunately my wife and I have established a good rapport with our sons' Teams and have been successful obtaining the services and accommodations both our sons need. Every year Alice and I… Continue

Added by Brian Denger on June 4, 2008 at 10:01pm — 3 Comments

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