Brian Denger's Blog – May 2008 Archive (3)

Wellstone MDCRC meeting 2008

As the public member of the Paul D. Wellstone Muscular Dystrophy Cooperative Research Center Steering Committee I attended the annual "face to face" meeting recently hosted by the University of Rochester Center in Rochester, NY. A little background might be helpful as many in the Duchenne community may not realize that as mandated by the MD CARE Act of 2001 these Centers are focused on research for the nine known Muscular Dystrophies including Duchenne, Becker, Limb Girdle MD,… Continue

Added by Brian Denger on May 16, 2008 at 9:12pm — No Comments

Balance

When my wife and I learned my sons had Duchenne Muscular Dystrophy it was like someone threw a wrench into our world. The questions came faster than the answers. For example, how are we supposed to go to work, breath or resist the urge to pull our sons out of school and just hold them? Well, as many of you know there are no answers others can provide. All truths must come from within based on who we are.



So, how do families learn to cope with a diagnosis like DMD and avoid going over… Continue

Added by Brian Denger on May 10, 2008 at 9:43pm — 2 Comments

The voices from within.

Most people who know me also know I run a little. O.K., maybe a lot. Last year I ran over 2400 miles. When I travel the first thing I usually do prior to leaving is map out a few places to run and speak with people in the area about the best places. In 2007 I ran in twelve states and in Canada. It must make me seem a bit compulsive, but that's me. What started as seeking a bit of exercise has morphed into a fund raising tool and an opportunity to reflect.



My typical run lasts about… Continue

Added by Brian Denger on May 1, 2008 at 9:13am — 1 Comment

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