Brian Denger's Blog – March 2014 Archive (1)

We Must Understand Heart Health in Duchenne

I have had the great pleasure of representing Parent Project Muscular Dystrophy and the Duchenne community at the Muscular Dystrophy Coordinating Committee (MDCC).   Members of the MDCC are involved in muscular dystrophy research, including federal agencies and advocacy organizations.   Last August, I spoke at a MDCC meeting. The meeting was seven months after my son Matthew died from a cardiac arrhythmia.   His passing made me realize the management of cardiac health is complex and needs to…

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Added by Brian Denger on March 11, 2014 at 6:00pm — No Comments

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