Ryan Fischer's Blog – December 2015 Archive (2)
PPMD Houston Roundtable: Session Recordings
In October, PPMD held a FACES Roundtable in Houston that included an incredible line up of global experts in care and research. In an effort to ensure this information reached families beyond Houston, we recorded the sessions. Special thanks to Rachel and James Poysky for pulling together such a wonderful event.
Stay tuned for more roundtable…
ContinueAdded by Ryan Fischer on December 10, 2015 at 3:30pm — No Comments
Register for PPMD's 2016 Advocacy Conference in Washington, DC (February 21-23, 2016)
Come and advocate for Duchenne directly with members of Congress.
PPMD's Annual Advocacy Conference, held in the first quarter of each year, is the only officially organized gathering on Capitol Hill for the Duchenne community. Families…
ContinueAdded by Ryan Fischer on December 3, 2015 at 10:54am — No Comments
Latest Blog Posts
- 70 Members of Congress Send Letter of Strong Support for Duchenne Priorities for Next Year’s Budget
- End Duchenne Tour Recap: Grand Rapids, MI
- ADD YOUR VOICE: Participate in PPMD’s Gene Therapy Survey
- End Duchenne Tour Recap: Morristown, NJ
- PPMD's 2018 Advocacy Conference | Schedule of Events
- VIDEO: Fundamentals of Access to Duchenne Therapies
- PPMD’s #EverySingleOne Tour: Boston, MA
Most Popular Blog Posts
- ACTION ALERT: Urge Lawmakers to Keep Driving Progress in the Fight to End Duchenne
- One week away from World Duchenne Awareness Day!
- Important Updates on the Duchenne Policy Forum
- ACTION ALERT: Urge House Member - Apply FDASIA Tools to Duchenne
- CALLING ALL CALIFORNIA RESIDENTS!
- ACTION ALERT: Please urge Your Senators to Sign Letter to FDA – Applying FDASIA Tools to Duchenne
- Help Protect Federal Spending on Rare Diseases like Duchenne
© 2021 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service
