Ryan Fischer's Blog – December 2014 Archive (2)
Short online questionnaire on Duchenne and epilepsy.
Sharing this survey from our friends at UPPMD. Please take a moment to fill it out. It is extremely short.
News: short online questionnaire on Duchenne and epilepsy.
Dear parents, boys and young men,
We want to ask your attention for a scientific research project on Duchenne muscular dystrophy and epilepsy.…
ContinueAdded by Ryan Fischer on December 18, 2014 at 9:52am — No Comments
PPMD Calls for Greater Transparency and Accountability of FDA Patient Engagement Efforts
Parent Project Muscular Dystrophy (PPMD) is urging Congress to build upon gains in recent years to further strengthen and enhance programs to ensure the patient voice is heeded during the drug development process during a Congressional briefing tomorrow, Tuesday, December 9th at…
ContinueAdded by Ryan Fischer on December 8, 2014 at 1:30pm — No Comments
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