Ryan Fischer's Blog – December 2014 Archive (2)

Short online questionnaire on Duchenne and epilepsy.

Sharing this survey from our friends at UPPMD. Please take a moment to fill it out. It is extremely short. 

News:  short online questionnaire on Duchenne and epilepsy.

 

 

Dear parents, boys and young men,  

We want to ask your attention for a scientific…

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Added by Ryan Fischer on December 18, 2014 at 9:52am — No Comments

PPMD Calls for Greater Transparency and Accountability of FDA Patient Engagement Efforts

Parent Project Muscular Dystrophy (PPMD) is urging Congress to build upon gains in recent years to further strengthen and enhance programs to ensure the patient voice is heeded during the drug development process during a…

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Added by Ryan Fischer on December 8, 2014 at 1:30pm — No Comments

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