Ryan Fischer's Blog – September 2014 Archive (3)

Congressional 21st Century Cures Initiative: PPMD Ensuring our Duchenne Community’s Place At the Table

PPMD is continuously seeking innovative opportunities to impact the process of developing therapies for Duchenne. Opportunity comes in many forms - funding promising research, advancing care standards for all patients, and advocating for key changes in federal policy.

 

Earlier this year Congress launched the 21st Century Cures Initiative, a comprehensive look at what can be done to accelerate the pace of cures in American therapeutic…

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Added by Ryan Fischer on September 15, 2014 at 12:00pm — No Comments

We Got Annie

Timing is everything. When I think back on how I found Pat, Kimberly, and PPMD ten years ago to the month, I often think about the events that led to that faithful interview in the fall of September 2004. Sure, maybe some of it was luck, but I also believe…

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Added by Ryan Fischer on September 10, 2014 at 4:00pm — No Comments

Action Alert: Tell the Senate to take action on MD-CARE Act!



Congress has returned from their Summer recess and it is time to re-engage them on the MD-CARE Act Amendments. We need each member of our community to reach out to your Senators and urge them to tell leadership to bring the…

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Added by Ryan Fischer on September 9, 2014 at 10:35am — No Comments

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