Ryan Fischer's Blog – June 2012 Archive (2)

Results from 2012 Advocacy Efforts- Success on Senate Appropriations!

Last week, the Senate Appropriations Committee approved its version of the bill that would fund many key agencies, including the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC), in FY 2013.  Thanks to the hard work of PPMD advocates, the bill reflects a number of our priorities.

 

At the CDC, Senators strongly objected to the administration’s proposal to consolidate the many programs within the National Center on Birth Defects…

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Added by Ryan Fischer on June 22, 2012 at 1:14pm — 1 Comment

PPMD Leads Critical Letter for Rare Disease Community

Parent Project Muscular Dystrophy (PPMD) has teamed up with EveryLife Foundation for Rare Diseases and Genetic Alliance to galvanize the rare disease community and send a strong message to…

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Added by Ryan Fischer on June 13, 2012 at 3:00pm — No Comments

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