Ryan Fischer's Blog – January 2015 Archive (2)

Get Active in Advocacy

2014 was a historic year in our community. 2015 promises to be another critical year in Duchenne and we need you to help keep the momentum going! Just look at the ‘to-do’ list:



  • MD-Care Act amendment implementation begins
  • New Drug Applications submissions expected by several companies
  • The FDA has stated publicly…
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Added by Ryan Fischer on January 28, 2015 at 1:30pm — No Comments

Student needs help with inclusion survey

Dear Friends,



high school student (Caleb SIzemore) is asking for help with a project about inclusion. 

Caleb is doing a senior thesis on avenues to increase social support for boys with Duchenne, based on his experience living with Duchenne and on research. He needs more responses to finalize the project. 

To participate…

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Added by Ryan Fischer on January 20, 2015 at 6:38pm — 1 Comment

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