Andrea Cleary's Blog (7)

Come on Canada

Dear DMD community, I would like to have Health Canada make its own decision, independent of the FDA, about Drisapersen and Eteplirsen and any upcoming duchenne drugs. We need all countries taking action on this, so let it be known that we want these drugs NOW. Please write to Health Canada, Rona Ambrose, our federal health minister, write to your provincial health ministers, ask your physicians to do it too, write or phone:

Genevieve Moore



Added by Andrea Cleary on March 3, 2014 at 11:30pm — 1 Comment


I am tired of it.

This life, this day.

Fess up ? Shut up.

Fed up ? Throw up.

Projectile puke this weariness

From my core.

Limbs leaden, mind is mud

Yet sleep still exhaustingly illusive.

Eyes involuntarily fluttering

Like a butterfly in a fan.

Sounds never sensed, auditory…


Added by Andrea Cleary on November 14, 2013 at 4:22pm — 2 Comments

Day's End

Day's End

Some morning too soon my son will not rise;…


Added by Andrea Cleary on August 19, 2012 at 1:49pm — No Comments

Assisted Humility

The door frames have been widened, the elevator is in.

Electric wires, like raw nerves, have been grafted by plaster skin.

For one…


Added by Andrea Cleary on March 9, 2012 at 10:00am — 5 Comments

Peaceful Schools International

A teacher in New York was teaching her class about bullying and gave them the following exercise to perform. She had the children take a piece of paper and told them to crumple it up, stomp on it and really mess it up, but do not rip it. Then she had them unfold the paper, smooth it out and look at how scarred and dirty it was. She then told them to tell it they’re sorry. Now even ...though they s…

Added by Andrea Cleary on November 4, 2011 at 9:16am — No Comments

Off the List

Off The List

Off the list

No more parties for you

Unfriended, blocked, unwelcome

A subtle rejection

Quiet and sneaky, perhaps

Why declare it with words?

Better to play it safe

Fly under the radar

It's not like you were UN-INVITED

The possibility of inclusion never even existed

There were no… Continue

Added by Andrea Cleary on July 17, 2011 at 11:00am — 2 Comments

On the Eve of Simon's 11th Birthday


Precious Quick-sand


Shins dotted purple and blue

With bruises of variable hue

Gastrucnemius swollen tight

AnkleFootOrthotics strapped on every night

Tummy out, shoulders thrown back

Waddling  like a penguin white and black

Balance is off, appetite is not

Damned Deflazacort  and that cake Grandma brought

Joyous green eyes, messy golden hair

Oh this is so not…


Added by Andrea Cleary on July 15, 2011 at 12:00am — 2 Comments

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