Dear DMD community, I would like to have Health Canada make its own decision, independent of the FDA, about Drisapersen and Eteplirsen and any upcoming duchenne drugs. We need all countries taking action on this, so let it be known that we want these drugs NOW. Please write to Health Canada, Rona Ambrose, our federal health minister, write to your provincial health ministers, ask your physicians to do it too, write or phone:
I am tired of it.
This life, this day.
Fess up ? Shut up.
Fed up ? Throw up.
Projectile puke this weariness
From my core.
Limbs leaden, mind is mud
Yet sleep still exhaustingly illusive.
Eyes involuntarily fluttering
Like a butterfly in a fan.
Sounds never sensed, auditory…Continue
Added by Andrea Cleary on August 19, 2012 at 1:49pm — No Comments
Added by Andrea Cleary on November 4, 2011 at 9:16am — No Comments
Shins dotted purple and blue
With bruises of variable hue
Gastrucnemius swollen tight
AnkleFootOrthotics strapped on every night
Tummy out, shoulders thrown back
Waddling like a penguin white and black
Balance is off, appetite is not
Damned Deflazacort and that cake Grandma brought
Joyous green eyes, messy golden hair
Oh this is so not…Continue