For those of you who caught our siblings panel and need additional information (or those who couldn't make it), I have attached a link.

http://http://www.parentprojectmd.org/site/DocServer/Sibshop__2.pdf?docID=4901

Remember, FAIR does not mean everyone gets the same, it means everyone gets WHAT THEY NEED.

I am thankful for so many things. I am most thankful for the strength I have.....the strength I have that somehow doesn't allow DMD rob me or my family of our most important power......JOY. We are thankful for joy. It is totally up to us wether we choose to feel it or not. We get that. I often lay in my bed and list the things I'm grateful for....my family, my house, my breathe, my today....but we all know...all that is useless without JOY.



XO May this be our best year yet. Full of…

Bernie Brillstein has passed away. He created the muppets, SNL, Ghostbusters and much much more. My husband was working for him when Anthony was diagnosed with DMD and he was so unbelievably compassionate and finanacially generous to our cause and to us personally. I want to take amoment to reflect on the passing of someone who's acitons will continue to live and take on a life of thier own.



He would be proud to know how much progress we have made since his intial support! May he… Continue