Teresa's Blog (6)

Jeffery is in surgery now please pray for him

Jeffery is in surgery now please pray for him Continue

Added by Teresa on March 19, 2009 at 12:33pm — 3 Comments

upcoming sugery

I have mixed emotions about my sons upcoming surgery. I take everyday one day at a time put I feel when it comes closer to the time I have been having panic attacks. I enjoy every minuet that I have with my boys. Everyone says he will be ok and not to worry. but reality what if they are wrong. I wish people would not tell me that he will be fine. It doesnt take any fear away. I want to say what if he isn't can I come to you and say you were wrong. I think about my son every moment now. I go… Continue

Added by Teresa on February 23, 2009 at 3:46pm — 3 Comments

spinal fusion

Jeffery has scoliosis and they recomended the spinal fusion. Is there anyone out their who knows about this. I'm terrified is this a goood idea.

Added by Teresa on January 30, 2009 at 8:41pm — 2 Comments

Guilt

2 years ago I was going through some ruff times. I was trying to do it all. I have 5 children all together 3 with DMD. There was a school nurse that asked me a question that I will never forget. For one did I know what birth control was and why did I decide to have children. She thought it was irresponsible to continue having children after I found that my first son had DMD. She wanted to know why I didnt abort the other children when I knew before I had them that they Could possible have DMD.… Continue

Added by Teresa on January 9, 2009 at 2:13pm — 6 Comments

IEP's Its hard to hear the bad news

i have 3 boys with DMD, I just recently went to my 6 year old sons IEP. It is hard to sit through it. Not only is my son affected with DMD he has major learning disibilities. I felt like a target in the room they sat and told me all the things that he couldnt do it was devestating.They are pulling him out of regular kindergarden and putting him in a self contained classroom. I met with the school phychiatrist, teacher, ot/pt and principle. I felt so alone in there about five minuets into the… Continue

Added by Teresa on December 15, 2008 at 7:34pm — 6 Comments

Just need support

I have 3 sons with DMD. Jeffery chris and Jo. 16, 6 and 3. I don't know where to start. I'm a working single mom and going to school full time to try and give my kids a better life. I don't know how to balance it all, I don't have time to be deppressed or even try to think about what the future holds for my boys. How do we balance it all IEP"s PT/OT Doctors App. I feel like I'm falling apart I think about it every day how much longer do I have with them. Is today the day that one of my boys… Continue

Added by Teresa on October 27, 2008 at 9:12pm — 6 Comments

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