Danielle's Blog – March 2014 Archive (2)

what happens next?

Well it has been a hell of a week. I have talked to two of my sons physical therapists. They have both in formed me that his hips and legs pretty much lost all muscle. He is losing upper body too, he has lost his grip, his shoulders, his elbows. And he is losing his back and stomach. So now i am wondering what comes next. He already has heart problems so what do we do.  Im scared that it is going to fast for him because it just started speeding up like this any suggestions.

Added by danielle on March 14, 2014 at 8:56pm — No Comments

to many questions not enough answers

How is it our sons can seem like this doesnt bother them? But then one day you watch him and you see everything he cant do but you sit and think its like this every day and hes fine. But this day he cries. I watched my son at a birthday party today, the other kids were playing with water balloons and a pinata. He tried playing both with them he was to weak to hit any candy out of the pinata and then when one of the bigger kids busted it all the other kids got the candy and my son sat under a…


Added by danielle on March 8, 2014 at 11:05pm — 1 Comment

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