Joyce Carpenter's Blog (2)

New Yorker article

Dear Pat,

As soon as we heard about this article Ben and I had to find the magazine.  We have a small store, old , here in Kalamazoo called Michigan News.  Sure enough they had it and I bought it.

What a wonderful article!  Thank you so much for sharing with us.  I never heard your whole story about Christopher and Patrick.  I loved the part best where you went to see the neurologist who said you should have aborted your second son's pregnancy.  I applauded and cheered you when…


Added by Joyce Carpenter on December 27, 2010 at 5:40pm — No Comments


Dear Pat,

How sweet to thank us. I am so thankful that we have you and PPMD organization. So much progress has been made. I am so amazed that now we have the NIH looking at muscle diseases and was appalled that they had not done so until PPMD came along. We have met so many other families dealing with this disease and I love sharing with them and hearing their stories about their sons. What a neat group of people!!!! Keep up the good work. And I am so thankful for our daughter and her… Continue

Added by Joyce Carpenter on November 28, 2008 at 9:30am — No Comments

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