Christine McSherry's Blog (8)

"Care Considerations in Duchenne Muscular Dystrophy" the first ten years...



The Roundtable will provide an invaluable opportunity for parents and family members of boys with Duchenne Muscular Dystrophy to gather with practitioners, researchers, and other parents in an informative and supportive environment.  It is our sincere hope that the Roundtable will facilitate an ongoing dialogue amongst the participants and the presenters so that we may achieve optimal care for boys living with Duchenne.

Preview of Presenters:

  • Elise Townsend, Ph.D.…
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Added by Christine McSherry on October 18, 2011 at 12:30pm — 1 Comment

Today's Update from JettRiders



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Added by Christine McSherry on July 4, 2010 at 10:29am — No Comments

Jett Ride 2010

In case you have not heard, Jett Foundation is once again providing an opportunity for siblings, friends, family to "ride for those who can not". Currently we have 12 cross country youth riders, several additional riders that will be doing "legs" or "sections" of the ride and adult chaperones.…
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Added by Christine McSherry on July 3, 2010 at 9:59am — No Comments

Pepsi Refresh Contest

Hello All!


Just a reminder to VOTE for Jett Foundation in the Pepsi Refresh Contest! Jett Foundation would like to send proceeds from this contest to ALL the B/DMD specific organizations who help us win!


Jett Foundation would like to collaborate with these organizations and fund important research projects that will bring us closer to a treatment!


Please show us YOUR efforts to collaborate on this endeavor using…
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Added by Christine McSherry on May 24, 2010 at 4:28pm — 1 Comment

Thanks!

Keep them coming - I am thrilled to have so much interest in the next JettRide!!!


The first JettRide in 2007 was truly a labor of love. My daughter Jordan did the entire ride, 3,800 miles in 9 weeks, at the ripe old age of 14 and "NO", she was not an athlete of any sort. She had never ridden a bike before that! I really didn't think she could do it - I learned that our kids, our "normal" kids, really have so much to offer when given the chance. They want to help,…
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Added by Christine McSherry on February 24, 2010 at 4:44pm — 1 Comment

Message from Dr. Brian - Harvard Forum

"Hello Families!


Thanks for coming to yesterdays forum on DMD -…
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Added by Christine McSherry on February 5, 2010 at 10:00am — No Comments

Invite to Harvard Medical Student Forum - Update

Harvard Medical Student Forum Update;





About six families affected by B/DMD attended yesterday's informal meeting with Harvard medical students; Living with Chronic Conditions. There was a broad age range of boys/young men represented, from 2 years old all the way to 46 years old!!…



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Added by Christine McSherry on February 5, 2010 at 8:34am — No Comments

Harvard Invite from Dr. Brian Tseng

How do we influence medical students to consider taking on muscular dystrophy as a doctor - or at least understand the way it affects families and the impact it has medically/emotionally/socially on the young people it affects - get them (medical students) when they're young and on a very interpersonal level.



Last year a group of parents and young men affected by Duchenne muscular dystrophy, attended a luncheon sponsored by medical students, at Harvard Medical School - it went so… Continue

Added by Christine McSherry on February 1, 2010 at 12:30pm — 1 Comment

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