MommaToo's Blog (6)

Since he is gone...

My son passed on March 21st.  Although it was peaceful, it was the most heart wrenching thing I have ever been through.  I just wanted to stop everything, but couldn't.  It was so fast.  He was fine, then 3 days later, gone!  I am glad he didn't suffer, but just have so many regrets.  It hasn't got easier yet.  Lets pray a cure or at least a treatment can be found soon so no one ever has to go through this again.

Added by MommaToo on May 1, 2012 at 12:30pm — 9 Comments

Cardiac Issues

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Added by MommaToo on May 1, 2010 at 12:30am — 2 Comments

Wish us Luck and Keep Us In Your Prayers...

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Added by MommaToo on April 28, 2010 at 10:31pm — 3 Comments

Caring Bridge Link

http://www.caringbridge.org/visit/brandonrice

Brandon's mom (Catriena Wheeler, also a member)) and I will be working on this together. Wish us luck and please leave lots of comments! Its our first attempt at trying to keep everyone near and far informed on Brandon.

Added by MommaToo on January 11, 2009 at 3:00pm — No Comments

Hits close to home.

I am having a terrible time sleeping. After reading about the TWO 13 year old boys with Duchenne's who passed away already this year, I am just heart broken! I cant imagine what the parents must be feeling. Although you know that your child is expected to have a limited life expectancy, you sure don't expect it to be 13! I guess it hit pretty hard because we have a soon to be 14 year old. Although he is doing well over all, little things seem to be happening and sneaking up on him.

Brandon… Continue

Added by MommaToo on January 10, 2009 at 7:30am — 2 Comments

When Brandon Entered My Life...

As most people know, I am Brandon's step-mom. I met Brandon when he was 5. His dad and I started doing some serious dating in January 2001. Brandon would come to my apartment and have a horrible time going up the stairs. By May, we were married, and by the end of June I had moved in with Brandon and his dad. Brandon was hyper and WILD! He run around and fell almost NON-STOP from the time he got up till the time he literally fell over to sleep. He had severe ADHD and some pretty MAJOR behavior… Continue

Added by MommaToo on December 29, 2008 at 9:42pm — 3 Comments

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