Michael stone's Blog (2)

reflecting back to the advocacy conference/PAAC initial meeting

  Attending the initial meeting of the PAAC in DC this last February was quite an amazing experience. It was our first live get together. I was so very impressed by the knowledge and enthusiasm of the group. We started out having 2 days of meetings and presentations. At he end of those two rather intense days we came together with a consensus of the things we as a committee were going to be tackling.

  One of the things that the group was asked to do was to come up with someone from…


Added by michael stone on April 27, 2015 at 3:13pm — 1 Comment

Michael E. Stone -serving with fellow distinguished members on the PAAC

I would like to introduce my self with a brief history. I'm 64 and living with BMD. How I came to find out the correct diagnosis of Becker muscular dystrophy is quite interesting and hopefully informative. I hope that my story could help those who might be in a similar situation. There will be a tie in to the work that the newbie PAAC has begun working on.

In 2000 at age 50, I thought that it was a proper time to start an annual physical routine. I visited my internist and all…


Added by michael stone on March 12, 2015 at 10:30am — No Comments

Need help using this community site? Visit Ning's Help Page.



© 2020   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service