Steve Dreher's Blog – December 2010 Archive (6)

Hope for Gus Blog

Hello PPMD Community, 

 

I moved a number of blog posts to PPMD from a blog I have maintained at Word Press and Blogspot for the past year.  It looks as if I wrote them all today, but they reflect the past year, which was the first year since Gus' diagnosis.

 

I wanted to share my thoughts with this community because you are the people who truly understand the roller-coaster emotional life of having a child with DMD.

 

I wish you all a wonderful New…

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Added by Steve Dreher on December 30, 2010 at 7:37am — No Comments

DMD and the Economics of Our Sons' Lives

It's been almost a year since Gus was diagnosed with DMD. On the drive into work this morning, I was thinking about what I've learned about DMD since that November…

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Added by Steve Dreher on December 30, 2010 at 7:29am — 2 Comments

Cousin Jake

I wanted to share a poem written by Jake, Gus' oldest cousin. Jake is in 8th grade, and he has shown us his maturity, compassion and love for his cousin by…

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Added by Steve Dreher on December 30, 2010 at 7:28am — 3 Comments

A Lot of Hope

On August 7, 2010 we had our most successful fundraiser yet at the Alexandria, MN Country Club. Tonya's dear friends from high school had spent six months…

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Added by Steve Dreher on December 30, 2010 at 7:27am — No Comments

$11,000 to Spend

In the few months since we began The Hope for Gus Foundation, due primarily to the generosity of our friends, family and…

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Added by Steve Dreher on December 30, 2010 at 7:26am — No Comments

The Kindness of Strangers

Our first big fundraiser was put on by our dear friends Steve and Marcey in Greenwich Village, NYC. We were at …

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Added by Steve Dreher on December 30, 2010 at 7:25am — No Comments

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