I didn't deal well with my son's diagnosis of Duchenne, at first -- I took a selfish, cowardly, escapist approach, numbing my mind with sex, drugs, alcohol, cigarettes and other self-destructive addictions. I let my son's disease feed my disease; it didn't do a…

I have been so focused on thinking I can help save my son’s life that I am avoiding, perhaps evading, mine and his actual current lives.  I’m not getting my work done. I don’t eat well. I hardly get outside or exercise anymore.  I feel mentally exhausted and frustrated by the time evening rolls around and I lay awake most nights crying. Those dark, lonely hours, reveal the…

I learned a few new things about my son today. Asked to name three people, real or fictitious, living or deceased, who he would like to have dinner with, here's who he picked: His grandpa Stalling (who died eight years ago); our old chocolate lab Sage (who died four years ago), and Katy Perry (who is still very much alive and singing).

Now I have "I kissed a…

I am often so focused on wanting to save my own son's life that I sometimes forget how many boys and their families and friends are affected by this terrible disease -- More than 300,000 boys worldwide have Duchenne Muscular Dystrophy! 

As most of you know by now, I am circulating a petition,…

06880 is the zip code for Westport, Connecticut, the town I grew up in. It is also the name of a popular, first-rate Blog created by lifelong Westporter Dan Woog.

Dan is an accomplished writer and teacher, well-respected public speaker, award-winning columnist, and longtime head coach of one of the most successful high…

It's critically and urgently important to get the attention and support needed to save my son's life and thousands of other boys who have Duchenne Muscular Dystrophy.

So I am trying a bit of a crazy (and desperate) social-media experiment -- I am trying to make a video about Cory and Duchenne GO…

WATCH-COMMENT-SHARE!

Please give five minutes of your life so that my son and thousands of other boys might have a full life!  You can help in three easy ways (and it won't cost you a cent): 1) Watch, 2) Comment, and 3) Share (and encourage others to watch and share!) 

I hope this video goes viral enough to get positive attention from the likes of…

Hi Cory.

You probably don’t remember me, but I am an old friend of your dad. We used to work a lot together and always had fun at it. I enjoy your dad because he is full of surprises and never shy about speaking his mind. I bet you are like that, too.

You and I met a few years ago, camping at Two Medicine Lake at Glacier National Park. You probably don’t…

Today, as I sit here writing this in Berkeley,…