Annie Kennedy's Blog – October 2017 Archive (2)
Calling All Adults with Duchenne/Becker – Join the 2018 PPMD Adult Advisory Committee!
Ever wished you could change the world – or at least your piece of it? Been looking for a way to engage a bit more? Have personal experience that you’d like to see be better reflected in national policy and program efforts?
PPMD is seeking adult members of our Duchenne/Becker community to serve on the PPMD Adult Advisory Committee…
ContinueAdded by Annie Kennedy on October 30, 2017 at 11:37am — No Comments
2017 World Muscle Society: Highlighting Progress in Duchenne
“WMS - What’s the buzz?”
It has been many years since I’ve had the opportunity to attend the World Muscle Society meeting and wow how things have changed! While PPMD has strong representation here every year, this year I have the pleasure of being here alongside Kathi…
ContinueAdded by Annie Kennedy on October 4, 2017 at 1:00pm — No Comments
Latest Blog Posts
- Action Alert! Americans with Disabilities Act (ADA) in Jeopardy
- Action Alert! Americans with Disabilities Act (ADA) in Jeopardy
- Meet the 2018 PPMD Adult Advisory Committee (PAAC)
- 2018 Off to a Strong Start — 'Patient Experience Data’ Section Added to FDA Reviews
- Take Action - We Can Still Impact the Tax Reform Bill
- PPMD Signs Letter to Congressional Leaders re: National Defense Authorization Act (NDAA) Language
- Updates in Duchenne Newborn Screening Efforts
Most Popular Blog Posts
- ACTION ALERT: Tell Your Senator to Vote NO on Today's Healthcare Repeal!
- The Big Day is Almost Here!
- PPMD Response to the House Passage of the American Health Care Act
- BREAKING NEWS: 21st Century Cures Crossed Over the Finish Line!
- Action Alert: If Passed, Proposed Tax Plans from Both Houses Will Affect Duchenne Community
- FDA Pediatric Advisory Committee Unanimously Votes YES — Now Moves to Commissioner
- 21st Century Cures Passes House of Representatives!
© 2019 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service
