Annie Kennedy's Blog – September 2016 Archive (3)

September is National Newborn Screening Awareness Month



September is National Newborn Screening Awareness month and PPMD has been helping to put Duchenne on the newborn screening map — the WORLD map.

Our community understands the inherent benefits of early diagnosis. We know that knowledge…

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Added by Annie Kennedy on September 14, 2016 at 11:30am — No Comments

PPMD Continues to Lead Work on Critical Duchenne Access Issues

With the promise of drug approvals on the horizon, access to these therapies will be critical to our Duchenne community. PPMD has been leading work related to Duchenne and rare disease community access issues on multiple fronts. 

The Institute for Clinical and…

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Added by Annie Kennedy on September 14, 2016 at 11:25am — No Comments

The Importance of Early Diagnosis: Eliminating the Diagnostic Odyssey

The global Duchenne community will come together on September 7 for World Duchenne Awareness Day. This year a theme was chosen that is not only critical to changing the diagnostic odyssey for people with…

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Added by Annie Kennedy on September 1, 2016 at 1:30pm — No Comments

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