There are moments in life that take your breath away. When you are truly in awe of the power and grace of others.
About a year ago, we put our a call to our community asking for adults living with Duchenne and Becker to consider applying to be a part of our Innagural PPMD Adult Advisory Committee (PAAC). We were overwhelmed by the response we received and were thrilled by the…Continue
Added by Annie Kennedy on September 16, 2015 at 11:23am — No Comments
We’re Looking for a Few (More) Good Men!
A year ago, we had a vision that we would begin to formalize the adult voice of our Duchenne community by convening a leadership group comprised of young adults and adults of accomplished and passionate men who also had Duchenne and…Continue
Added by Annie Kennedy on September 16, 2015 at 11:00am — No Comments
Ad Comms – What’s the buzz all about? If you’ve been anywhere near social media lately, you’ve likely seen the term ‘Ad Comm’ referenced. Speculation about dates, implications for approvals and access to therapies we all care about, questions about who…Continue
Added by Annie Kennedy on September 14, 2015 at 12:32pm — No Comments