Annie Kennedy's Blog – January 2017 Archive (2)
Meet the 2017 PPMD Adult Advisory Committee (PAAC)
Years ago, a friend of mine named Tom Bailey who had Duchenne wrote a memoir that he entitled, Moving Mountains Without Muscles. As I look at the tremendous accomplishments of PPMD’s Adult Advisory Committee since we first launched this leadership group 2 years ago, I am astounded by how much passion, expertise, and effort each member has dedicated to…
ContinueAdded by Annie Kennedy on January 16, 2017 at 7:30pm — No Comments
New Resource to Help Navigate EXONDYS 51 Access
Prior to the approval of EXONDYS 51™, we knew that access to emerging therapies would be a process – and an often challenging process at…
ContinueAdded by Annie Kennedy on January 13, 2017 at 11:00am — No Comments
Latest Blog Posts
- Action Alert! Americans with Disabilities Act (ADA) in Jeopardy
- Action Alert! Americans with Disabilities Act (ADA) in Jeopardy
- Meet the 2018 PPMD Adult Advisory Committee (PAAC)
- 2018 Off to a Strong Start — 'Patient Experience Data’ Section Added to FDA Reviews
- Take Action - We Can Still Impact the Tax Reform Bill
- PPMD Signs Letter to Congressional Leaders re: National Defense Authorization Act (NDAA) Language
- Updates in Duchenne Newborn Screening Efforts
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- 21st Century Cures Passes House of Representatives!
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