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All Blog Posts Tagged 'PPMD Blog' (764)


Staff
So Much Happening this Weekend....

Greetings Friends!

 

We have a very busy weekend ahead of us, with some fantastic events happening in the community!

I wanted to take a moment to highlight these fun and very different fundraisers taking place over the weekend.

Big shout out to all those who are organizing events (not just these events- all…

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Added by Ryan Fischer on October 21, 2011 at 1:30pm — No Comments


Staff
Rate your Duchenne/Becker care through the Clinic Survey

The MD-CARE Act was signed into law in 2001 and reauthorized in 2008. What’s that got to do with a clinic survey you might ask? The MD-CARE Act was a pivotal moment. In a certain way, it was…

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Added by Pat Furlong on October 13, 2011 at 10:32am — 3 Comments


Staff
Co Blog: A Blue One

Co-Blog- This month, I wanted to share with you a blog Ivy wrote that really affected me and I think will move you. For me, this is story is about taking off our glasses, the way we view others, the way we view the world.   Hard as it is, heartbreaking as it may be, we have to squint, to see the world differently, and to see the world as our sons see the world.  And with some luck, we might just appreciate ‘the blue one.’ Thank you Ivy for sharing a moment we all can…

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Added by Pat Furlong on October 7, 2011 at 11:00am — 3 Comments


Staff
An Amazing September Starts a Fall of Promise

Dear Friends,



As we say goodbye to September and hello to autumn, I wanted to take a moment and thank you.



PPMD and the entire Duchenne community are busier than ever. There is so much to do, to push forward, to get done, in our daily lives and in the care of our sons. Every now and then, though, it is important to take a minute to exhale and realize what you’ve done, what’s been accomplished, and what is happening around you.



I…

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Added by Pat Furlong on October 5, 2011 at 9:00pm — No Comments

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