PPMD joined 153 members of the CDC Coalition and other supporting state and national organizations in urging Congressional leaders to provide at least $7.8 billion for the Centers for Disease Control and Prevention’s programs as part of the final FY 2018 Labor, Health and Human…Continue
Added by PPMD on December 7, 2017 at 12:20pm — No Comments
This holiday season, PPMD is asking you to support our ongoing Gene Therapy Initiative. Gene therapy has dominated the headlines this year…Continue
Added by Pat Furlong on December 7, 2017 at 10:30am — No Comments
Parent Project Muscular Dystrophy, FSH Society Lead Effort to Obtain
Critical Diagnostic Classification Standard
Added by PPMD on December 7, 2017 at 8:30am — No Comments
Today Parent Project Muscular Dystrophy (PPMD) named UCSF Benioff Children’s Hospital San Francisco (UCSF) our 18th Certified Duchenne Care…Continue
Added by PPMD on December 6, 2017 at 9:30am — No Comments
An email from a mom in war-torn Baghdad who doesn’t know how to even start to seek care for her son with a new diagnosis.
A mom in India who can’t find a provider who will give her son steroids, but instead say stem cells will cure…Continue
Added by Kathi Kinnett on December 5, 2017 at 11:55am — No Comments
The Senate passed their tax reform bill. In the dead of night. Overnight -- shortly before 2 AM on Saturday.
Despite protests and outcries from almost every sector: non-profits, disability communities, healthcare providers, educators, universities, researchers, graduate students (future researchers, geneticists, nurses,…Continue
Added by Annie Kennedy on December 5, 2017 at 9:00am — No Comments
So much has changed in the Duchenne research landscape since we were founded back in 1994, but your commitment has been a constant since our story began.
You’ve never stopped fighting, and the promise for our community has never been greater, with recent breakthroughs in gene therapy,…
Added by Pat Furlong on December 4, 2017 at 10:30am — No Comments