PPMD Community

December 2017 Blog Posts (7)


Staff
PPMD Signs Letter to Save CDC

PPMD joined 153 members of the CDC Coalition and other supporting state and national organizations in urging Congressional leaders to provide at least $7.8 billion for the Centers for Disease Control and Prevention’s programs as part of the final FY 2018 Labor, Health and Human…

Continue

Added by PPMD on December 7, 2017 at 12:20pm — No Comments


Staff
Expanding PPMD’s Gene Therapy Initiative

This holiday season, PPMD is asking you to support our ongoing Gene Therapy Initiative. Gene therapy has dominated the headlines this year…

Continue

Added by Pat Furlong on December 7, 2017 at 10:30am — No Comments


Staff
Duchenne/Becker and FSH Muscular Dystrophies Receive ICD-10 Codes

Parent Project Muscular Dystrophy, FSH Society Lead Effort to Obtain

Critical Diagnostic Classification Standard

 

Parent…

Continue

Added by PPMD on December 7, 2017 at 8:30am — No Comments


Staff
PPMD Designates UCSF Benioff Children's Hospital San Francisco a Certified Duchenne Care Center

Today Parent Project Muscular Dystrophy (PPMD) named UCSF Benioff Children’s Hospital San Francisco (UCSF) our 18th Certified Duchenne Care…

Continue

Added by PPMD on December 6, 2017 at 9:30am — No Comments


Staff
Making Duchenne Care and Clinical Trials Better – Globally

An email from a mom in war-torn Baghdad who doesn’t know how to even start to seek care for her son with a new diagnosis.



A mom in India who can’t find a provider who will give her son steroids, but instead say stem cells will cure…

Continue

Added by Kathi Kinnett on December 5, 2017 at 11:55am — No Comments


Staff
Take Action - We Can Still Impact the Tax Reform Bill

The Senate passed their tax reform bill. In the dead of night. Overnight -- shortly before 2 AM on Saturday.



Despite protests and outcries from almost every sector: non-profits, disability communities, healthcare providers, educators, universities, researchers, graduate students (future researchers, geneticists, nurses,…

Continue

Added by Annie Kennedy on December 5, 2017 at 9:00am — No Comments


Staff
Invest in gene therapy--all gifts matched!

So much has changed in the Duchenne research landscape since we were founded back in 1994, but your commitment has been a constant since our story began.



You’ve never stopped fighting, and the promise for our community has never been greater, with recent breakthroughs in gene therapy,…

Continue

Added by Pat Furlong on December 4, 2017 at 10:30am — No Comments

Monthly Archives

2017

2016

2015

2014

2013

2012

2011

2010

2009

2008

2007

© 2017   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service