PPMD Community

Featured Blog Posts – November 2014 Archive (3)

Staff Finding gratitude in the bittersweet

We are just two days away from probably my favorite holiday. And I am writing a message to you, like I always do, in my little home office in Middletown before I leave town for Thanksgiving.

I am surrounded by photos of my family and normally would spend a few moments feeling nostalgic. Chris…

Continue

Added by Pat Furlong on November 25, 2014 at 12:00pm — No Comments

Staff Duchenne Pulmonary Care for Tweens and Teens (Webinar Summary & Recording)

The lungs require the strength of many muscles to help a person to breathe and cough. As people with Duchenne grow older, the respiratory muscles, like the skeletal muscles, become weaker. Like the heart, every person with Duchenne will have pulmonary issues of some…

Continue

Added by Kathi Kinnett on November 6, 2014 at 10:00am — No Comments

Staff Patients Are Waiting...

The FDA is listening and has told us as much. But that doesn’t mean we should stop doing everything we can to educate the Agency.

Thanks to the dozens of you who participated in PPMD’s benefit/risk project and took the time to share your story, we have been able to compile your responses and…

Continue

Added by PPMD on November 3, 2014 at 7:30am — 1 Comment