All Blog Posts (1,824)

The voices from within.

Most people who know me also know I run a little. O.K., maybe a lot. Last year I ran over 2400 miles. When I travel the first thing I usually do prior to leaving is map out a few places to run and speak with people in the area about the best places. In 2007 I ran in twelve states and in Canada. It must make me seem a bit compulsive, but that's me. What started as seeking a bit of exercise has morphed into a fund raising tool and an opportunity to reflect.

My typical run lasts about… Continue

Added by Brian Denger on May 1, 2008 at 9:13am — 1 Comment

December, 2007 Update (St. Louis Children's)

Bradley's St. Louis appt. this month went well. The student doctor commented that Bradley seemed more like a child with Becker Muscular Dystrophy than Duchenne Muscular Dystrophy. For those that don't know, Becker MD is a milder version of DMD. The neurologist said we should not ignore the fact that the muscle biopsy done when Bradley was 3 years old indicated DMD. There are varying degrees of both DMD and BMD. I am hoping Bradley is borderline between the two. I doubt we will be doing any…


Added by Lisa Jones on December 24, 2007 at 2:00pm — No Comments

August 2007 St. Louis Cardiologist Visit

Bradley had a cardiology visit this week but I'm not sure what to do about starting lisinopril. The cardiologist does not advocate starting it before heart changes appear. He said he was disappointed in our neuromuscular doctors for giving credibility to one study showing lisinopril can help prevent cardiomyopathy. It may be he didn't like another doctor making recommendations in his field of expertise. He also is adament that it is very unusual for heart changes to appear in a child with…


Added by Lisa Jones on August 12, 2007 at 3:30pm — No Comments

June, 2007 St. Louis Children's Hospital Update

Just wanted to update everyone on Bradley's St. Louis Children's MD visit today. He is doing well for being 10 years old. We talked about the chest pain he has been having. I told him the Family PA had ordered an echocardiogram and it was normal. I also told him it was concluded that he has stomach…

Added by Lisa Jones on June 12, 2007 at 3:30pm — No Comments

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