Capping a two-year advocacy campaign led by Parent Project Muscular Dystrophy (PPMD), today President Barack Obama signed the MD-CARE Act Amendments of 2014 into law, providing a significant victory to…
ContinueAdded by PPMD on September 26, 2014 at 4:30pm — No Comments
Duchenne Community Knows No Bounds
Today – September 18, 2014, our Duchenne community once again made history by demonstrating that nothing could stop us from ensuring that the life-saving research momentum of our landmark bill would be expanded to reflect the current needs of our…
ContinueAdded by Pat Furlong on September 18, 2014 at 10:13pm — 2 Comments
Congress has returned from their Summer recess and it is time to re-engage them on the MD-CARE Act Amendments. We need each member of our community to reach out to your Senators and urge them to tell leadership to bring the…
Added by Ryan Fischer on September 9, 2014 at 10:35am — No Comments
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