Featured Blog Posts – September 2012 Archive (11)

Parent Project Muscular Dystrophy awards $50,000 to Dr. Toshifumi Yokota for multi-exon skipping project

We are so happy to support the work of Dr. Toshifumi Yokota at the University of Alberta, in Canada. Exon skipping looks…

Continue

Added by Sharon Hesterlee on September 27, 2012 at 2:30pm — No Comments


Staff
Implementing PDUFA

With Congress decamping from Washington and not expected to return until after the November election, we thought we'd revisit one of the few bright spots of bipartisanship this Congress – the enactment of the latest FDA user fee law (PDUFA), known as the FDA Safety and Innovation Act or FDASIA.…

Continue

Added by Ryan Fischer on September 26, 2012 at 10:00am — No Comments


Staff
Notre Dame

Sure, I’ve been there, several times, but it has been a long time, more time than I realized. We actually had no plans to visit, but it seemed worth doing, having just spent the weekend in Dowagiac, Michigan, remembering summers long ago. It was an off-hand idea: my daughters Jenny and Michelle were flying back to New York, from South Bend…

Continue

Added by Pat Furlong on September 19, 2012 at 4:00pm — No Comments


Staff
Why we joined the team: The Dumm Family

With the 5th annual Coach To Cure MD right around the corner on September 29, 2012, we wanted to tell you why you should make this the year you get in the game and show your support for one of the biggest national awareness campaigns in the Duchenne community. And we wanted you to hear it from families that have participated since the beginning... Here's why the Dumm Family joined the team!

 …

Continue

Added by Danielle Garrigan on September 17, 2012 at 2:30pm — No Comments

Early diagnosis makes a difference

Parents of children with Duchenne and Becker muscular dystrophy often experience a diagnostic odyssey that is too long and too emotionally difficult. Parents who have shared the story of their diagnoses told us:

“My son’s pediatrician blew off my concerns and told me some children just develop slower…

Continue

Added by Holly Peay on September 13, 2012 at 1:12pm — No Comments


Staff
Why we joined the team: The Cook Family

With the 5th annual Coach To Cure MD right around the corner on September 29, 2012, we wanted to tell you why you should make this the year you get in the game and show your support for one of the biggest national awareness campaigns in the Duchenne community. And we wanted you to hear it from families that have participated since the beginning... Here's why the Cook Family joined the team!

 …

Continue

Added by Danielle Garrigan on September 13, 2012 at 8:48am — No Comments

Webinar Replay: Back to School

Back to school is sometimes more difficult for parents than for their children. This is especially true when their children have developmental or other disabilities that affect their ability to participate in the general curriculum. These children may require specialized supports and services to be successful.…

Continue

Added by Brian Denger on September 12, 2012 at 12:30pm — No Comments


Staff
Why we joined the team: The Poysky Family

With the 5th annual Coach To Cure MD right around the corner on September 29, 2012, we wanted to tell you why you should make this the year you get in the game and show your support for one of the biggest national awareness campaigns in the Duchenne community. And we wanted you to hear it from families that have participated since the beginning... First up is the Poysky Family!

 …

Continue

Added by Danielle Garrigan on September 10, 2012 at 10:30am — No Comments

Getting moving again

PPMD Note: Mary Connolly recently joined PPMD as Vice President of Development. She comes to us from Episcopal Social Services, Gilda’s Club, and the United Way.



Last month I had the pleasure of assisting at two very inspirational events. On August 4, I was a race official…

Continue

Added by Mary G. Connolly on September 9, 2012 at 8:30am — No Comments


Staff
The flu vaccine and Duchenne: What you need to know

Yes, summer is winding down, and the welcoming of fall brings many things – cooler weather, wonderful fall colors, the beginning of school and, unfortunately, the start of flu season. Every year, thousands of people get the flu. While it can be an inconvenience for some, the flu has resulted in thousands of deaths.…

Continue

Added by Kathi Kinnett on September 6, 2012 at 9:30am — No Comments

Featured Monthly Archives

2017

2016

2015

2014

2013

2012

2011

2010

2009

2008

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2018   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service