PPMD Community

September 2008 Blog Posts (10)

Link to Blog

Hi all,

I have started a new blog for myself at http://mysonmyrainweatherreport.blogspot.com/. Check it out if you like.

Ivy

Added by Ivy Scherbarth on September 30, 2008 at 12:52am — 2 Comments

Thank you

I just wanted to say thanks to everyone here at this site.
It is so easy to forget that I am not alone in this fight.

Added by Eileen DeLong on September 26, 2008 at 12:00pm — 2 Comments


Staff
Advocacy

These last few days have been pretty wild. On Tuesday, the Paul D. Wellstone MD CARE Act passed the House of Representatives and sent to the Senate. For the last few days, PPMD, Cornerstone and Senate Committee staff have been in contact, negotiating and working to move the Bill forward. Today at 10:50 AM, we are on pins and needles waiting, hoping for good news that the Bill has passed the Senate. The bill then moves to back to the House and on to the President for signature. This has been an… Continue

Added by Pat Furlong on September 26, 2008 at 11:13am — 3 Comments

Welcome to Holland

WELCOME TO HOLLAND

byEmily Perl Kingsley.



c1987 by Emily Perl Kingsley. All rights reserved



I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......



When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans.… Continue

Added by Rhiannon Traigle on September 21, 2008 at 3:41am — 2 Comments

Pnuemonia vs. College classes

Tim has been ill- so ill they admitted him into the hospital on Monday afternoon and by Tuesday morning, he was in ICU for respiritory arrest. Get the full scoop at our College Mom's Blog.

Added by Dee on September 16, 2008 at 7:59pm — No Comments

A word from the College Kid's mom....

I have really enjoyed blogging the last month or so...and more so that I am going through college with my son, (only I don't get credit for it like he does). But I'm enjoying attending his classes anyhow. Although for the most part I feel so out of place- and wishing so much I can be 20-30 years younger again. Even most of the (graduate-students) instructors are so good looking!



However, the challenges that Tim has to go through while attending a great University like UF. Well, for… Continue

Added by Dee on September 13, 2008 at 1:30pm — No Comments

Looking through a glass onion

There are times I watch my boys from a distance and try to imagine what they are thinking. I realize they face challenges we can only imagine, yet I seek access to their world without being intrusive. I have to believe they have similar dreams and desires and try to catch glimpses by observing them when they are just being themselves.



Today I had one of those opportunities. Patrick had just gotten off the bus and I saw him at the end of the driveway. I peered out the window wondering… Continue

Added by Brian Denger on September 12, 2008 at 5:30pm — 7 Comments

Today was a blur!

I didn't have a moment to spare today. Started the day at 6:00. Got Brad on the bus by 7:30 and then Ben dressed and delivered to pre-school at 9:15. Since I didn't really have time to go home before my 10:00 appointment, I stopped at a coffee shop and had a delicious hot chocolate and read my devotional for today. I'm glad I took time for that.



My 10:00 appointment was at church with my pastor. Our church is huge so I had never really talked to him for any length of time but I… Continue

Added by Lisa Tepper on September 12, 2008 at 5:00am — 2 Comments

Our 25th Wedding Anniversary

Today is our 25th wedding Anniversary.



When we started out 25 years ago we never imagined that life would be is hard as it has been. If were not for God’s grace and mercy, which are given to us anew every day we would not have made it. There are so many times it would have been so easy for us to go our separate ways, but I cannot even begin to imagine walking this journey with any one else. While Muscular Dystrophy has placed a huge strain on our lives and our marriage, in many ways… Continue

Added by Susan Rathfelder on September 3, 2008 at 3:08pm — 3 Comments

College Mom's Blog

Come read about a College DMD kid & his mom

Life as mom who assist my 19 year old son through his college career. The up's and down & the laughters and the fustrations of being on a large Univeristy campus does have its challenges.

Added by Dee on September 3, 2008 at 11:17am — 4 Comments

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