Featured Blog Posts – August 2015 Archive (5)


Staff
PPMD’s DuchenneConnect to Receive $1.4 Million Funding Award from PCORI

(pictured: DuchenneConnect's Family Advisors at PPMD's 2015 Connect Conference)



DuchenneConnect
, led by PPMD, has been approved for…

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Added by Ann Lucas on August 12, 2015 at 12:04pm — No Comments


Staff
One week away from World Duchenne Awareness Day!

People around the world will help participate in the second annual World Duchenne Awareness Day on September 7th. There are a variety of ways you can get involved with this international effort – how will you…

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Added by Ryan Fischer on August 7, 2015 at 10:30am — No Comments


Staff
PPMD Submits Comments on FDA's Draft Guidance on Duchenne

We are coming to the end of the 60 day open comment period for the FDA’s draft guidance on Duchenne. PPMD submitted our comments to the agency yesterday –…

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Added by PPMD on August 6, 2015 at 11:09am — No Comments


Staff
Action ALERT: Urge your Senators to Cosponsor S. 1597, the Patient-Focused Impact Assessment Act!

Call and email your Senators today! The Food and Drug Administration’s efforts to support meaningful patient engagement, also known as Patient-Focused Drug Development (PFDD), includes the strengthening of existing tools and creation of new ones needed to fill gaps, policies to allow for greater engagement of external experts in the review process, and a…

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Added by PPMD on August 5, 2015 at 12:57pm — No Comments

Different Together: PPMD Announces the Duchenne Regulatory Science Consortium

Signal to Noise

This is a measure used in science and engineering to compare the level of a desired signal (a measured outcome) to the background noise. In a way, this is the question of what information carries weight/is meaningful and what information clouds the issue.



While this sounds really complicated, we have witnessed…

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Added by John D. Porter, PhD on August 3, 2015 at 9:00am — No Comments

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