Featured Blog Posts – August 2013 Archive (3)
Staff PPMD to Fund $1 Million in Exon Skipping Projects
PPMD announced today that it will fund up to $1 million in projects by mid-2014 focused on the development of antisense oligonucleotides or other techniques to skip exons that are not currently in clinical development, or for multi-exon skipping projects, including the skipping of…
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Staff Transition
This summer, just prior to the 2013 Annual Connect Conference in Baltimore, a group of 40 parents, advocates, and professionals gathered for two days to discuss the needs, and how best to meet the needs, of individuals living with Duchenne. Historically, Duchenne has been a pediatric diagnosis with no need to discuss adolescent and adult issues – thankfully, those…
Added by Kathi Kinnett on August 8, 2013 at 11:38am — No Comments
Staff Weeding
Guest post by Ivy Scherbarth. Ivy is a Colorado/Wyoming FACES Coordinator for PPMD and mom to Hazel, age 8, and Rain, age 6. Rain has Duchenne muscular dystrophy. Follow Ivy at her blog, Living …
ContinueAdded by PPMD on August 2, 2013 at 8:00am — No Comments
Latest Featured Blog Posts
- PPMD Designates UC Davis a Certified Duchenne Care Center
- PPMD Working with FDA to Plan Landmark Pediatric Advisory Committee Meeting to Improve Clinical Trial Experience
- PPMD's Duchenne Drug Development Roundtable Meeting Series, Part 3: Clinical Trial Readiness from the Viewpoint of Clinicians and Infrastructure
- ACTION ALERT: Make Your Voice Heard on New Healthcare Proposal
- PPMD's Duchenne Drug Development Roundtable Meeting Series, Part 2: Optimizing Clinical Trials
- PPMD Designates Ann & Robert H. Lurie Children's Hospital of Chicago a Certified Duchenne Care Center
- Marathon Pharmaceuticals Pauses Commercialization of EMFLAZA™ (deflazacort)
Most Popular Featured Blog Posts
- FDA Grants Accelerated Approval to First Drug for Duchenne Muscular Dystrophy
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- A Historic Day for Duchenne
- Early morning calls
- Action ALERT: Urge Congress to Vote YES on 21st Century Cures Act
- PPMD Announces Gene Therapy Forum
- What You Need to Know about Duchenne & Viral Gastroenteritis (That Horrible Stomach Bug!)
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