Featured Blog Posts – August 2013 Archive (3)


Staff
PPMD to Fund $1 Million in Exon Skipping Projects

PPMD announced today that it will fund up to $1 million in projects by mid-2014 focused on the development of antisense oligonucleotides or other techniques to skip exons that are not currently in clinical development, or for multi-exon skipping projects, including the skipping of…

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Added by PPMD on August 14, 2013 at 11:00am — 1 Comment


Staff
Transition

This summer, just prior to the 2013 Annual Connect Conference in Baltimore, a group of 40 parents, advocates, and professionals gathered for two days to discuss the needs, and how best to meet the needs, of individuals living with Duchenne.  Historically, Duchenne has been a pediatric diagnosis with no need to discuss…

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Added by Kathi Kinnett on August 8, 2013 at 11:38am — No Comments


Staff
Weeding

Guest post by Ivy Scherbarth. Ivy is a Colorado/Wyoming FACES Coordinator for PPMD and mom to Hazel, age 8, and Rain, age 6. Rain has Duchenne muscular dystrophy. Follow Ivy at her blog,…

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Added by PPMD on August 2, 2013 at 8:00am — No Comments

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