PPMD Community

Featured Blog Posts – August 2011 Archive (3)


Staff
Johnny and Julie’s X-Cellent Wedding

Next to Jenny and Kris’ wedding, this wedding  of Johnny and Julie was perfect in every way.   It was X-cellent because it was held at Xavier University, Bellarmine Chapel.  Johnny had  called me several months back to ask if I would do a reading. And while I called him Johnny, Patrick always called him Kat.

 

Johnny (Kat) and Patrick were friends.  I would be standing in for Patrick.  I have known Johnny for years and seeing him all grown up, about to be married was wonderful.…

Continue

Added by Pat Furlong on August 22, 2011 at 12:41pm — 4 Comments


Staff
PPMD Provides Travel Grant for Clinical Trial

By now you have probably seen the latest news from our friends at AVI BioPharma, announcing it has initiated dosing in a Phase 2 study of eteplirsen, their lead exon-skipping therapeutic candidate for the treatment of Duchenne. Parent Project Muscular Dystrophy has been a long-time believer in the work being done at AVI and was happy to provide a $50,000 travel…

Continue

Added by Pat Furlong on August 17, 2011 at 12:07pm — 11 Comments


Staff
IEP, Then and Now

Co-Blog – The following is a co-blog put together by myself and Ivy Scherbarth, a mother from CO and PPMD’s FACES Coordinator for CO/WY. This is a new project we have started where we will both write on similar topics from two different perspectives, but living in the same world of Duchenne.

 

IEP 

By, Ivy…

Continue

Added by Pat Furlong on August 10, 2011 at 11:00pm — 3 Comments

Featured Monthly Archives

2014

2013

2012

2011

2010

2009

2008

© 2014   Created by PPMD.

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service