Next to Jenny and Kris’ wedding, this wedding  of Johnny and Julie was perfect in every way.   It was X-cellent because it was held at Xavier University, Bellarmine Chapel.  Johnny had  called me several months back to ask if I would do a reading. And while I called him Johnny, Patrick always called him Kat.

Johnny (Kat) and Patrick were friends.  I would be standing in for Patrick.  I have known Johnny for years and seeing him all grown up, about to be married was wonderful.…

By now you have probably seen the latest news from our friends at AVI BioPharma, announcing it has initiated dosing in a Phase 2 study of eteplirsen, their lead exon-skipping therapeutic candidate for the treatment of Duchenne. Parent Project Muscular Dystrophy has been a long-time believer in the work being done at AVI and was happy to provide a $50,000 travel…

Co-Blog – The following is a co-blog put together by myself and Ivy Scherbarth, a mother from CO and PPMD’s FACES Coordinator for CO/WY. This is a new project we have started where we will both write on similar topics from two different perspectives, but living in the same world of Duchenne.

IEP 

By, Ivy…