Featured Blog Posts – August 2011 Archive (3)

Staff Johnny and Julie’s X-Cellent Wedding

Next to Jenny and Kris’ wedding, this wedding of Johnny and Julie was perfect in every way. It was X-cellent because it was held at Xavier University, Bellarmine Chapel. Johnny had called me several months back to ask if I would do a reading. And while I called him Johnny, Patrick always called him Kat.

Johnny (Kat) and Patrick were friends. I would be standing in for Patrick. I have known Johnny for years and seeing him all grown up, about to be married was wonderful.…

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Added by Pat Furlong on August 22, 2011 at 12:41pm — 4 Comments

Staff PPMD Provides Travel Grant for Clinical Trial

By now you have probably seen the latest news from our friends at AVI BioPharma, announcing it has initiated dosing in a Phase 2 study of eteplirsen, their lead exon-skipping therapeutic candidate for the treatment of Duchenne. Parent Project Muscular Dystrophy has been a long-time believer in the work being done at AVI and was happy to provide a $50,000 travel…

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Added by Pat Furlong on August 17, 2011 at 12:07pm — 11 Comments

Staff IEP, Then and Now

Co-Blog – The following is a co-blog put together by myself and Ivy Scherbarth, a mother from CO and PPMD’s FACES Coordinator for CO/WY. This is a new project we have started where we will both write on similar topics from two different perspectives, but living in the same world of Duchenne.

IEP

By, Ivy…

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Added by Pat Furlong on August 10, 2011 at 11:00pm — 3 Comments