PPMD Community

Featured Blog Posts – August 2009 Archive (5)

Staff Please vote for Stuart Peltz, President and CEO of PTC Therapeutics.

Dear Friends,

Please vote for Stuart Peltz, Ph, President and CEO of PTC Therapeutics.

Stu has been has been nominated for R&D Magazine’s Scientist of the Year award. After reviewing candidates’ applications, the editors of R&D Magazine selected seven nominees. Now it is up to the public to choose the 2009 Scientist of the Year.

While PTC is known to our community for PTC124/Ataluren, it is important to understand that there is a great deal more… Continue

Added by Pat Furlong on August 28, 2009 at 4:55pm — 3 Comments

Staff Who's steering this ship anyway?

By now you have probably checked out the Coach To Cure MD website, gotten a feel for all of the amazing things going on in the PPMD community to support Coach To Cure, and hopefully have gotten involved yourself. I wanted to take a moment, though, to recognize the people behind the scenes that are keeping the wheels of Coach To Cure MD turning.

CTC was the brain child of Brad Todd, brother of Rachel Poysky and uncle to Joel… Continue

Added by Pat Furlong on August 24, 2009 at 8:00am — 1 Comment

Staff The World Muscle Society Meeting

If your summer was quiet and your Google alerts focused on fundraising rather than breaking news, hold on. Its almost September and while September is the third quarter of the year, in some ways it is a beginning, when life ramps up, school starts, Congress returns, and the world of muscle gathers in Geneva Switzerland for the World Muscle Society (WMS) meeting – September 9-12, 2009.

Thankfully Duchenne muscular dystrophy and/or muscle is the topic of many meetings throughout the… Continue

Added by Pat Furlong on August 19, 2009 at 11:24am — 4 Comments

Staff Kicking off autumn with hope

So here we are, just six weeks away from the 2nd Annual Coach To Cure MD weekend on September 26. And here I am, again, completely awestruck by the way the Duchenne community has come together already to make this the year’s Coach To Cure even more successful than last year’s!

You are even more creative and more ambitious, determined to tackle and defeat Duchenne with this extraordinary partnership between PPMD and the American… Continue

Added by Pat Furlong on August 13, 2009 at 4:56pm — No Comments

Staff Life can change on a dime

“Life can change on a dime," my father used to say. I’m not sure about the dime, but I do know life changes with a single word. Duchenne changes life. Cancer does as well.

My husband, Tom is a physician. He gives advice and lives by his own advice, taking good care of his own health. In May, Tom was scheduled for a colonoscopy. We laughed about the prep, the amount of pills he had to take, the amount of water he had to drink and of course, the number of times he was “romancing” the… Continue

Added by Pat Furlong on August 10, 2009 at 10:18am — 31 Comments