In the 20+ years PPMD has been around, the average lifespan of people with Duchenne has increased. This incredible leap is not because of any drug interventions or treatments because as we all know, to date there are no approved therapies. Rather this is because of the push from PPMD to advance care over the last two decades.
PPMD strives to ensure that every single person with Duchenne receives optimal care. …Continue
Added by PPMD on July 28, 2016 at 2:18pm — No Comments
The 2016 Connect Conference again provided a forum for families to interact with a variety of resource providers. We thank our resource fair sponsors for working with us to make every single resource known to our community!…Continue
Added by PPMD on July 14, 2016 at 1:36pm — No Comments