Featured Blog Posts – July 2015 Archive (6)


Staff
Changes to Deflazacort Ordering Process (via Masters Pharmaceuticals)

Masters now has an increasing supply of Deflazacort (a steroid available to treat Duchenne outside the US).…

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Added by PPMD on July 27, 2015 at 4:00pm — 1 Comment


Staff
PPMD Awards $70,000 Grant to Talem Technologies as Part of Robotics Initiative

Grant Will Be Used to Support Pilot Study for X-Ar Exoskeletal Arm Technology



Parent Project Muscular Dystrophy has awarded Talem Technologies a grant for over $70,000 to support a pilot study of their…

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Added by PPMD on July 20, 2015 at 10:00am — No Comments


Staff
PPMD's 2015 Connect Conference Resources & Recordings - Part 2 (Friday)

Presentations from Day 2 of PPMD’s 21st Annual Connect Conference in Washington, D.C. are now available for download. If you were unable to attend this year’s conference or if you want to replay a presentation that you found particularly useful, we will be sharing all of the presentations over the next…

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Added by PPMD on July 17, 2015 at 11:30am — No Comments


Staff
PPMD's 2015 Connect Conference Resources & Recordings - Part 1 (Thursday)

The first batch of presentations from PPMD’s 21st Annual Connect Conference in Washington, D.C. are available for download. If you were unable to attend this year’s conference or if you want to replay a presentation that you found particularly useful, we will be sharing all of the presentations over…

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Added by PPMD on July 14, 2015 at 9:00am — No Comments


Staff
Action ALERT: Urge Congress to Vote YES on 21st Century Cures Act

For over a year, PPMD has been working with Congress on landmark legislation called 21st Century Cures. The bill aims to speed the discovery, development, and delivery of therapies for diseases that have an unmet medical need like Duchenne. We have been thankful to…

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Added by PPMD on July 8, 2015 at 11:17am — 1 Comment


Staff
Revised Duchenne Anesthesia Recommendations 2015

Historically, people with Duchenne have been told that using inhaled anesthetics can cause malignant hyperthermia (“MH”; extremely high body temperature), a condition causing rhabdomyolysis (breakdown of skeletal muscle tissue causing the release of…

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Added by Kathi Kinnett on July 2, 2015 at 10:00am — No Comments

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