Featured Blog Posts – July 2012 Archive (4)


Staff
July Note: The Theater of Duchenne

I think at this point we all get that ending Duchenne is going to take a collaboration of efforts. Treatments will come from different researchers, produced by different pharmaceutical companies, and supported by different foundations. Ending Duchenne will be an ensemble piece, a collection of great…

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Added by Pat Furlong on July 17, 2012 at 3:30pm — No Comments


Staff
Landmark FDA legislation becomes law

Major win for the Duchenne community

PPMD applauds the President for signing into law the Prescription Drug User Fee Act also known as The Food and Drug Administration Safety and Innovation Act. Most recently, PPMD worked with the Everylife Foundation for Rare Diseases and Genetic Alliance to organize…

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Added by Ryan Fischer on July 9, 2012 at 6:00pm — No Comments


Staff
Action Alert! Contact your Senators to help save vital Duchenne programs at the CDC

We need your voice to help save critical Duchenne related programs at the Center for Disease Control (CDC)!…



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Added by Ryan Fischer on July 9, 2012 at 12:00pm — No Comments


Staff
2012 Connect Conference

Guest blog by Jill Anne Castle, mother of two boys, Oliver, 10 & Anthony, 12 (living with Duchenne). Jill works for the Arizona Department of Education in the exceptional student services division as a parents advocate and is the PPMD…

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Added by PPMD on July 3, 2012 at 12:30pm — No Comments

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