Added by Rita Felling on July 31, 2011 at 4:00am — No Comments
We just returned Thursday night from our bi-annual trip to Cincinnati Children's Hospital for Bradley's medical appointments. Bradley's neurologist and physical therapist are pleased with Bradley's muscle strength. They are really amazed by it. They emphasized again the importance of Bradley's stretching exercises and wearing his AFO's every night.
The physical therapist would also like for Bradley to begin wearing his hand splints again because his fingers are getting tight again.…Continue
I attended the PPMD Annual Connect Conference earlier this month. Each year I always try to come away with something concrete This year I found the session entitled Herself First very helpful and informative. It was of course geared toward Mom's caring for Duchenne guys. However, I think women in general need to be able to concentrate on themselves. Women in general are usally taking care of everyone one their families and neglect themselves. One of the points from this…Continue
Added by Christine Piacentino on July 23, 2011 at 10:00pm — No Comments
Shins dotted purple and blue
With bruises of variable hue
Gastrucnemius swollen tight
AnkleFootOrthotics strapped on every night
Tummy out, shoulders thrown back
Waddling like a penguin white and black
Balance is off, appetite is not
Damned Deflazacort and that cake Grandma brought
Joyous green eyes, messy golden hair
Oh this is so not…Continue
This is just a speculative thought which I have compiled after going through my daily life on Google Search engine
First about the trip to Mars. In today's world its estimated that a human trip to Mars will be about 3 years. It will take about 8 to 9 months to go to Mars, spending about a year on Mars and then again about 9 months back.
So how does it connect with Duchenne.
We know from the time astronauts have spent in space that, in a micro gravity…
Added by Rita Felling on July 3, 2011 at 12:42am — No Comments