Featured Blog Posts – July 2009 Archive (2)


Staff
EMEA meeting in London

You may or may not have heard Treat NMD has scheduled a meeting with EMEA (European Medicines Agency) or the regulatory agency for the EU. The purpose of the meeting is dialogue: discussion about potentially promising treatments for Duchenne. The discussion will cover a range of areas to include drug development, clinical trials, and outcome measures. Our champions in Congress have written to FDA, urging them to take part in this critically important conversation.



For the last many… Continue

Added by Pat Furlong on July 29, 2009 at 3:46pm — 7 Comments


Staff
What's in a name?

PPMD was founded 15 years ago. Feels like a long time in so many ways. We were young then. There were few disease specific organizations and no Duchenne specific organization. The very idea of starting an organization that would take on the challenge of treatment and a cure for Duchenne was pretty overwhelming. We were not thinking about issues of identity or branding. We were a small group of parents and our first thought was our sons. It made sense to be the “Duchenne Muscular Dystrophy… Continue

Added by Pat Furlong on July 14, 2009 at 9:45am — 5 Comments

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