Featured Blog Posts – July 2008 Archive (1)


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PPMD Conference

After 14 years of holding conferences, writing a review should be relatively easy and in some ways it is. Parents and family members gather to learn, to find something, to understand better, to gain strength. Some are new to the diagnosis, the word Duchenne muscular dystrophy a recent addition to their vocabulary. They are raw, tender, bruised and brave making the decision to attend and commit three days of precious time. It is amazing to me to see the community, sitting, attentive, at times… Continue

Added by Pat Furlong on July 30, 2008 at 3:44pm — 7 Comments

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