Featured Blog Posts – June 2013 Archive (3)


Staff
PPMD Published Article: Transforming Duchenne Care

The Annual PPMD Connect Conferences have always been a haven for obtaining information around a broad range of topics applicable to the entire Duchenne community. Last year, we hosted a pre-conference meeting to address a single topic of need expressed by providers, parents, and patients alike – discrepancy in the care of people living with…

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Added by Kathi Kinnett on June 26, 2013 at 8:30am — No Comments


Staff
Speaking to the EMA

Today, I will be speaking with Treat NMD and European Medicines Agency (EMA) in response to their draft guidance on clinical studies in Duchenne muscular dystrophy. Elizabeth Vroom from Duchenne Parent Project in the Netherlands, Filippo Buccella from Parent Project Onlus in Italy, and I will be speaking on topics like clinical trials, inclusion criteria, and…

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Added by Pat Furlong on June 21, 2013 at 10:18am — 2 Comments


Staff
New "Care for Duchenne" Section

With so many exciting happenings at PPMD and in our community, it is too easy to rush from one “fire” to the next and forget to celebrate our successes. Take a moment with us, and check out one success: our new Care for Duchenne pages



We created the new…

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Added by PPMD on June 13, 2013 at 2:00pm — 1 Comment

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