Featured Blog Posts – June 2012 Archive (5)
PPMD to Host First Transforming Duchenne Care Meeting
PPMD is pleased to host the first Transforming Duchenne Care Meeting, June 27-28, 2012, immediately preceding the Annual Connect Conference in Fort Lauderdale. The goal of the Transforming Duchenne Care Meeting is to bring together leadership from top…
Added by Will Nolan on June 25, 2012 at 10:00am — No Comments
Staff AVI BioPharma and PPMD team up to run the Rock 'n' Roll Seattle Marathon
Run For Our Sons (PPMD's endurance program) is teaming up with AVI BioPharma in Saturday's Rock 'n' Roll Seattle…
Added by Nicole Herring on June 20, 2012 at 4:00pm — No Comments
Staff June Note: Time to Connect
It’s the official start of summer. And for our community, it’s that time of year when we come together with caregivers, scientists, and industry for PPMD’s Annual Connect Conference. This year’s agenda is quite astonishing, reflecting the vast number of therapies in the works, the updates to care, our increased presence in Congress, and a panel series that will dissect the clinical…
ContinueAdded by Pat Furlong on June 14, 2012 at 11:00pm — No Comments
Staff PPMD Leads Critical Letter for Rare Disease Community
Parent Project Muscular Dystrophy (PPMD) has teamed up with EveryLife Foundation for Rare Diseases and Genetic Alliance to galvanize the rare disease community and send a strong message to…
Added by Ryan Fischer on June 13, 2012 at 3:00pm — No Comments
Weeks 4-6 - One Step to End Duchenne
Ending my sixth week at over 700 miles!!! Passed the 500 mile marker and still going.
Photos
Visit
…
Added by Tim "1Step" Rice on June 7, 2012 at 3:03pm — No Comments
Latest Featured Blog Posts
- PPMD Designates UC Davis a Certified Duchenne Care Center
- PPMD Working with FDA to Plan Landmark Pediatric Advisory Committee Meeting to Improve Clinical Trial Experience
- PPMD's Duchenne Drug Development Roundtable Meeting Series, Part 3: Clinical Trial Readiness from the Viewpoint of Clinicians and Infrastructure
- ACTION ALERT: Make Your Voice Heard on New Healthcare Proposal
- PPMD's Duchenne Drug Development Roundtable Meeting Series, Part 2: Optimizing Clinical Trials
- PPMD Designates Ann & Robert H. Lurie Children's Hospital of Chicago a Certified Duchenne Care Center
- Marathon Pharmaceuticals Pauses Commercialization of EMFLAZA™ (deflazacort)
Most Popular Featured Blog Posts
- FDA Grants Accelerated Approval to First Drug for Duchenne Muscular Dystrophy
- Deflazacort Approved in the U.S. for Duchenne
- A Historic Day for Duchenne
- Early morning calls
- Action ALERT: Urge Congress to Vote YES on 21st Century Cures Act
- PPMD Announces Gene Therapy Forum
- What You Need to Know about Duchenne & Viral Gastroenteritis (That Horrible Stomach Bug!)
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