PPMD Community

Featured Blog Posts – June 2012 Archive (5)

PPMD to Host First Transforming Duchenne Care Meeting

PPMD is pleased to host the first Transforming Duchenne Care Meeting, June 27-28, 2012, immediately preceding the Annual Connect Conference in Fort Lauderdale. The goal of the Transforming Duchenne Care Meeting is to bring together leadership from top…

Continue

Added by Will Nolan on June 25, 2012 at 10:00am — No Comments

Staff AVI BioPharma and PPMD team up to run the Rock 'n' Roll Seattle Marathon

Run For Our Sons (PPMD's endurance program) is teaming up with AVI BioPharma in Saturday's Rock 'n' Roll Seattle…

Continue

Added by Nicole Herring on June 20, 2012 at 4:00pm — No Comments

Staff June Note: Time to Connect

It’s the official start of summer. And for our community, it’s that time of year when we come together with caregivers, scientists, and industry for PPMD’s Annual Connect Conference. This year’s agenda is quite astonishing, reflecting the vast number of therapies in the works, the updates to care, our increased presence in Congress, and a panel series that will dissect the clinical…

Continue

Added by Pat Furlong on June 14, 2012 at 11:00pm — No Comments

Staff PPMD Leads Critical Letter for Rare Disease Community

Parent Project Muscular Dystrophy (PPMD) has teamed up with EveryLife Foundation for Rare Diseases and Genetic Alliance to galvanize the rare disease community and send a strong message to…