Happy Graduation to all of the young men in this community!  Whether it be grad school, college, high school, middle school, elementary school, or even kindergarten–graduation is a major milestone in Duchenne. (Take a minute to acknowledge the graduates in your life on our Facebook page!)

It has been awhile since I have attended commencement exercises, high school, college, or graduate school.  This year I had quite a…

On June 1, I joined the WNW, the launch of Inspired Wining and it was amazing!  But that’s what happens with women, steel magnolias all of them, who hold each other together through good times and bad.   Six friends, who make a plan to come together on a regular basis to share, to support, to uplift, to mobilize, to change the world.

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Eli Razon from Easy Walking Inc. has introduced a new device to the neuromuscular community. Tina Duong, a PT from Children’s National Medical Center, has recently had some hands-on experience. Michelle Eagle (Newcastle) and Laura Case (Duke) have also commented.

The thought is that this device might be useful for boys/adolescents in the transition stage (loss of ambulation) and/or potentially to help regain ambulation following fracture.

The concept…