June 2008 Blog Posts (24)

Pool and Hot tub

This week we put in a 15 foot pool (we'll go bigger later, but this will help Kelvin for now). We then bought a hot tub and tub enclosure today, so that we can all be in the hot tub any time of the year, even when it is super cold. Of course, we bought this to help Kelvin, on advice of Dr. Wong, she says the pool and hot tub are great, so that is what we did. I can't wait to be in the hot tub, but we won't get it going until fall. We are just doing what we can to help him, whatever it takes.

Added by Kelvinsmom - Michelle on June 8, 2008 at 6:13pm — 4 Comments

11 hours and counting....

Just 11 hours left until the car comes to pick us up for Sam's Make-a-Wish Disney World trip. To say he, and the other two, are excited would be quite the understatement. I'm just hoping they all get a little sleep tonight. I'm still trying to make sure I have everything packed. I've got my checklist. I seem to be doing well, but I can't ever shake that feeling that I'm forgetting something. Ah well, guess there's always a Wal-Mart around the corner for just that reason, right?



Today… Continue

Added by Laurie Paschal on June 7, 2008 at 9:00pm — No Comments


Staff
Lessons Learned – Steroids

The loss of a child for any reason is unacceptable, heartbreaking, and tragic. I try on the idea of ‘there is always a silver lining’ but find the phrase just doesn’t fit in many cases. I do think, through our tears, we can learn something…so forgive me for ranting.



As parents, we need to be vigilant. We need to ask questions and expect answers. We need to be better informed about steroids and more knowledgeable about risk. We need to understand:



1. That complaints of… Continue

Added by Pat Furlong on June 5, 2008 at 3:13pm — 13 Comments

IEPs and other things we learn.

Matthew is finishing his freshman year and he, Alice and I recently attended his annual IEP meeting. These meetings often lead to concerns about high blood pressure and lost sleep for parents. Working with educators and professionals in their domain and attempting to speak in their language is challenging. Fortunately my wife and I have established a good rapport with our sons' Teams and have been successful obtaining the services and accommodations both our sons need. Every year Alice and I… Continue

Added by Brian Denger on June 4, 2008 at 10:01pm — 3 Comments

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