PPMD Community

May 2015 Blog Posts (9)


Staff
Alternative Resources for Deflazacort

As many of you know, there has recently been a recall of 2 batches of deflazacort. The recall is specific to deflazacort 30mg, (Marketing Authorisation Holder: Sandoz) and was recently issued by the Spanish Agency of Medicine. The batches that are affected and subject to the recall notification are J021 (expiry 30/06/2017) and J028 (expiry 30/09/2017).



Many families…

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Added by Kathi Kinnett on May 28, 2015 at 12:30pm — 1 Comment


Staff
SomaLogic Study Published: Another Piece of the Puzzle

Today, SomaLogic and PPMD - together with several other Duchenne research groups - published a significant discovery that explains a technology allowing researchers to accurately measure the individual proteins in very…

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Added by Pat Furlong on May 26, 2015 at 1:30pm — 2 Comments

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Added by brian phillip nicholoff on May 21, 2015 at 3:35pm — No Comments


Staff
PPMD's 2015 Connect Conference: Register for the End Duchenne Rally & Hill Day by June 1

With this year's Annual Connect Conference in Washington, DC, PPMD wanted to take advantage of being in our Nation's Capital and ensure that our Duchenne community leaves an indelible imprint…

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Added by PPMD on May 19, 2015 at 12:30pm — No Comments


Staff
PPMD’s Connect Series: Bringing Together You & the Experts

For 21 years, PPMD has been connecting the Duchenne community with experts in the field focused on research, advocacy, and care. Our largest gathering is, of course, PPMD’s Annual Connect…

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Added by PPMD on May 12, 2015 at 11:00am — No Comments


Staff
Saying Goodbye to Matt Petrusko, PAAC Member

Last night, another beautiful spirit in the Duchenne community left this world much too early. Matt Petrusko was a 34-year-old from Rahway, New Jersey and a proud member of PPMD’s…

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Added by Pat Furlong on May 11, 2015 at 4:01pm — 1 Comment


Staff
2015 Newly Updated Vaccination Recommendations

As you know, PPMD works very hard to keep you as up to date as possible. Sometimes those updates come very quickly, as has recently happened with recommendations for vaccinations. While we just recently published a new “altered vaccination schedule,” discussions with the Centers for Disease Control and…

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Added by Kathi Kinnett on May 7, 2015 at 1:30pm — 1 Comment


Staff
PPMD's 2015 Connect Conference Agenda: Now Available!

PPMD is excited to share with you the agenda for the 21st Annual Connect Conference in Washington, D.C., June 18-21 at the Washington Marriott Wardman Park. Every year our agenda grows and…

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Added by PPMD on May 4, 2015 at 5:00pm — No Comments

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